We invite all parents, grandparents, friends, members of St. James Church to come and join us in our fund-raising ventures.
We need people from all walks of life who can spend a little time helping us with our fundraising ventures. Why not come along and have a chat and a coffee.
Everyone is welcome to attend as an extra pair of hands are much valued and appreciated.
Please find below some of our key dates and minutes from our meetings –
Share and Donate at: www.savingbellamorris.com
Please donate to fund research to develop a treatment for Bella our daughter and other children suffering with Vanishing White Matter Disease an extremely rare, genetic, degenerative and life limiting disease that affects mostly children.
Diagnosis is between 2-6 years, prior to which they have developed normally. This sudden, unexpected, rapid deterioration has a devastating effect on the child and their family. With loss of the ability to walk, further deterioration of motor skills, losing the ability to talk, eat, followed by blindness and deafness leading to eventual death.
Please support us and make a difference